About this Research Topic
Dementia is a complex and chronic condition associated with significant physical, cognitive, and emotional challenges. The burden of dementia weighs not only on people living with dementia but also on their families and caregivers. The development of new effective and sustainable dementia care interventions, therefore, requires the active engagement of all service users in research studies and in the implementation of research findings in the dementia care practice, while ensuring that interventions are tailored to meet individual needs and preferences. However, there remains a need to build innovative methods to engage service users in the development and evaluation of dementia care interventions.
The goal of this Research Topic is to explore and advance the use of innovative methods to engage dementia care users in research and practice development. Specifically, we aim to highlight best practices and approaches to involving people living with dementia and their families in the design, implementation, and evaluation of dementia care interventions, with a focus on participatory, co-design, and other collaborative approaches to research and practice development.
We welcome the submission of any type of manuscript supported by the journal (including Original Research, Review, etc.) addressing a range of topics related to stakeholder engagement in the development and evaluation of dementia care interventions. These topics may include, but are not limited to, the following:
- The design and implementation of participatory, co-design, or other collaborative approaches to research and practice development in dementia care, including methods to identify and prioritize the needs and preferences of dementia care users and their families.
- The role of patient and public involvement (PPI) in the development and evaluation of dementia care interventions, including the evaluation of PPI approaches and their impact on intervention design and outcomes.
- Strategies to engage and support caregivers in the co-design and evaluation of dementia care interventions, including best practices in recruitment, training, and building capacity.
- The evaluation of the impact of stakeholder engagement on the acceptability, feasibility, effectiveness, and sustainability of dementia care research and interventions.
- Ethical and practical considerations in the use of participatory and co-design approaches to dementia care research and practice development.
- Suitable theoretically sound frameworks to inform and guide the engagement of people with dementia and their family members in research that intends to enhance their lives.
The goal of this Research Topic is to explore and advance the use of innovative methods to engage dementia care users in research and practice development. Specifically, we aim to highlight best practices and approaches to involving people living with dementia and their families in the design, implementation, and evaluation of dementia care interventions, with a focus on participatory, co-design, and other collaborative approaches to research and practice development.
We welcome the submission of any type of manuscript supported by the journal (including Original Research, Review, etc.) addressing a range of topics related to stakeholder engagement in the development and evaluation of dementia care interventions. These topics may include, but are not limited to, the following:
- The design and implementation of participatory, co-design, or other collaborative approaches to research and practice development in dementia care, including methods to identify and prioritize the needs and preferences of dementia care users and their families.
- The role of patient and public involvement (PPI) in the development and evaluation of dementia care interventions, including the evaluation of PPI approaches and their impact on intervention design and outcomes.
- Strategies to engage and support caregivers in the co-design and evaluation of dementia care interventions, including best practices in recruitment, training, and building capacity.
- The evaluation of the impact of stakeholder engagement on the acceptability, feasibility, effectiveness, and sustainability of dementia care research and interventions.
- Ethical and practical considerations in the use of participatory and co-design approaches to dementia care research and practice development.
- Suitable theoretically sound frameworks to inform and guide the engagement of people with dementia and their family members in research that intends to enhance their lives.
Keywords: dementia care users, participatory research, co-design approaches, stakeholder engagement
Important Note: All contributions to this Research Topic must be within the scope of the section and journal to which they are submitted, as defined in their mission statements. Frontiers reserves the right to guide an out-of-scope manuscript to a more suitable section or journal at any stage of peer review.
