The rare diseases community has first-hand experience of the impact of health inequalities and has an acute understanding of the psychosocial determinants of health. The Research Topic aims to bring together a diverse group of experts in rare diseases, research ethics, intersectionality, and inclusive research.
We aim to increase awareness of rare diseases and to foster the development of inclusive research and better treatments within the rare disease community. Submissions can cover any aspect of policy, practice, or theory relevant to rare disease communities.
Manuscripts may take the form of completed empirical studies, theoretical papers, and critical reviews. Submission of but not limited to Original Research Articles, Reviews, Methods, Protocols, and Case Reports that provide progress in researching rare diseases including, but not limited to:
• Intersectionality
• Ethics and regulation
• Community engagement
• Psychosocial determinants of health in rare diseases
• Inclusive research
The rare diseases community has first-hand experience of the impact of health inequalities and has an acute understanding of the psychosocial determinants of health. The Research Topic aims to bring together a diverse group of experts in rare diseases, research ethics, intersectionality, and inclusive research.
We aim to increase awareness of rare diseases and to foster the development of inclusive research and better treatments within the rare disease community. Submissions can cover any aspect of policy, practice, or theory relevant to rare disease communities.
Manuscripts may take the form of completed empirical studies, theoretical papers, and critical reviews. Submission of but not limited to Original Research Articles, Reviews, Methods, Protocols, and Case Reports that provide progress in researching rare diseases including, but not limited to:
• Intersectionality
• Ethics and regulation
• Community engagement
• Psychosocial determinants of health in rare diseases
• Inclusive research