Building a Learning Health System in Pediatric Rheumatology

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BRIEF RESEARCH REPORT

Published on 13 Nov 2024

Achieving Reliable Patient Reported Outcomes Collection to Measure Health Care Improvement in a Learning Health Network: Lessons from Pediatric Rheumatology Care and Outcomes Improvement Network

Nancy Pan
Esi Morgan
Meghan Ryan
Beth Gottlieb
Julia Harris
Tzielan Lee
Y Ingrid Goh

doi 10.3389/fped.2024.1443426

PERSPECTIVE

Published on 25 Oct 2024

Digital health technology to support patient-centered shared decision making at point of care for juvenile idiopathic arthritis

Bin Huang
Michal Kouril
Chen Chen
Nancy M. Daraiseh
Kerry Ferraro
Melissa L. Mannion
Hermine I. Brunner
Daniel J. Lovell
Esi M. Morgan

doi 10.3389/fped.2024.1457538

534 views

ORIGINAL RESEARCH

Published on 22 Oct 2024

Key data elements for a successful pediatric rheumatology virtual visit: a survey within the PR-COIN network

Y. Ingrid Goh
Meghan E. Ryan
Shoghik Akoghlanian
Rajdeep Pooni
Julia G. Harris
Danielle R. Bullock
Sheetal S. Vora
Tzielan C. Lee
Shirley M.L. Tse
Fatima Barbar-Smiley

doi 10.3389/fped.2024.1457607

462 views

BRIEF RESEARCH REPORT

Published on 17 Oct 2024

Implementation of an automated transition readiness assessment in a pediatric rheumatology clinic

Melissa Argraves
Elizabeth Murray
Alysha Taxter
Kelly Wise
Paul T. Jensen
Alana Goldstein-Leever
Bethanne Thomas
Alexa Scott
James Gallup
2 more
Vidya Sivaraman

doi 10.3389/fped.2024.1457651

369 views

BRIEF RESEARCH REPORT

Published on 15 Oct 2024

Navigating the path to equitable rheumatologic care for underserved children with quality improvement

Sheetal S. Vora
Sarah C. Mabus
Talia L. Buitrago-Mogollon

doi 10.3389/fped.2024.1426588

407 views

ORIGINAL RESEARCH

Published on 08 Oct 2024

Automated mental health screening in pediatric lupus: associations with disease features and treatment

Lauren Harper
Stacy P. Ardoin
Alana Leever
Kyla Driest
Vidya Sivaraman
Alysha J. Taxter

doi 10.3389/fped.2024.1427543

550 views

BRIEF RESEARCH REPORT

Published on 27 Aug 2024

Improving lupus care index documentation in patients with childhood-onset systemic lupus erythematosus

Fatima A. Barbar-Smiley
Cagri Yildirim-Toruner
Shoghik Akoghlanian
Ohoud AlAhmed
Stacy P. Ardoin
Ashlee Leone
Edward Oberle
Vidya Sivaraman

doi 10.3389/fped.2024.1428644

417 views

BRIEF RESEARCH REPORT

Published on 13 Aug 2024

Electronic health record modification and dashboard development to improve clinical care in pediatric rheumatology

Livie Timmerman
Heather Dutton
Nicholas McDannald
Emily A. Smitherman
Melissa L. Mannion

doi 10.3389/fped.2024.1428792

514 views

PERSPECTIVE

Published on 09 Aug 2024

The critical role of parents within a Learning Health Network

Kerry Ferraro
Jenny Leal
Anna Sutton
Susan Peters
Corinne Pinter

doi 10.3389/fped.2024.1428758

592 views

ORIGINAL RESEARCH

Published on 02 Aug 2024

Using a collaborative learning health system approach to improve disease activity outcomes in children with juvenile idiopathic arthritis in the Pediatric Rheumatology Care and Outcomes Improvement Network

Julia G. Harris
Catherine A. Bingham
Sheetal S. Vora
Cagri Yildirim-Toruner
Michelle Batthish
Danielle R. Bullock
Jon M. Burnham
Danielle C. Fair
Kerry Ferraro
14 more
Esi M. Morgan

doi 10.3389/fped.2024.1434074

772 views
1 citation

ORIGINAL RESEARCH

Published on 24 Jul 2024

Assessing disparities through missing race and ethnicity data: results from a juvenile arthritis registry

Katelyn M. Banschbach
Jade Singleton
Xing Wang
Sheetal S. Vora
Julia G. Harris
Ashley Lytch
Nancy Pan
Julia Klauss
Danielle Fair
5 more
Esi M. Morgan

doi 10.3389/fped.2024.1430981

654 views

BRIEF RESEARCH REPORT

Published on 23 Jul 2024

Intra-articular corticosteroid utilization and characterizations of use in juvenile idiopathic arthritis within the PR-COIN registry

Erin Balay-Dustrude
Jennifer E. Weiss
Y. Ingrid Goh
Nathan Rubin
Danielle R. Bullock

doi 10.3389/fped.2024.1423362

636 views

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Pediatric Rheumatology

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Articles

Achieving Reliable Patient Reported Outcomes Collection to Measure Health Care Improvement in a Learning Health Network: Lessons from Pediatric Rheumatology Care and Outcomes Improvement Network

Digital health technology to support patient-centered shared decision making at point of care for juvenile idiopathic arthritis

Key data elements for a successful pediatric rheumatology virtual visit: a survey within the PR-COIN network

Implementation of an automated transition readiness assessment in a pediatric rheumatology clinic

Navigating the path to equitable rheumatologic care for underserved children with quality improvement

Automated mental health screening in pediatric lupus: associations with disease features and treatment

Improving lupus care index documentation in patients with childhood-onset systemic lupus erythematosus

Electronic health record modification and dashboard development to improve clinical care in pediatric rheumatology

The critical role of parents within a Learning Health Network

Using a collaborative learning health system approach to improve disease activity outcomes in children with juvenile idiopathic arthritis in the Pediatric Rheumatology Care and Outcomes Improvement Network

Assessing disparities through missing race and ethnicity data: results from a juvenile arthritis registry

Intra-articular corticosteroid utilization and characterizations of use in juvenile idiopathic arthritis within the PR-COIN registry

Frontiers in Pediatrics

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