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ORIGINAL RESEARCH article
Front. Sociol.
Sec. Sociology of Emotion
Volume 9 - 2024 |
doi: 10.3389/fsoc.2024.1434500
This article is part of the Research Topic Affecting, Emoting, and Feeling Disability: Entanglements at the Intersection of Disability Studies and the Sociology of Emotions View all 3 articles
Raising Aluminum Foil Fists: How to Speak about Anger in Transplant Medicine
Provisionally accepted- 1 York University, Toronto, Canada
- 2 University of Toronto, Toronto, Ontario, Canada
Dominant narratives of solid organ transplantation foreground vocabularies of gratitude. Solidorgan transplantation is often celebrated in biomedicine for its high-tech innovation and specialization. But transplantation also includes the organizations that oversee the distribution of donated organs to potential recipients who disproportionately outnumber available organs. Waitlisting for transplant weighs urgency and fitness for transplant against availability, as individuals must simultaneously demonstrate their conditions are severe enough to warrant transplantation while at the same time are well enough to withstand the transplant procedure that is meant to return the individual from critical illness to able-bodied health. This article considers how promises of cure make affective demands on transplant recipients. Dominant transplantation narratives and metaphors frame transplantation as "rebirth" and the "gift of life." But this framework constrains transplant recipients' affective and emotional repertoires, positioning gratitude as the primary-if not only-acceptable feeling for performing that the "gift of life" was deserved. Such narrowly sanctioned possibilities for expression elide the affective complexities of recipients-and foreclose opportunities for expressing anger and frustration. This paper unpacks the politics of verbalizing anger among solid-organ transplant recipients at a Canadian hospital. Using arts-based sensory interviews with 27 participants, this paper traces expressions of anger as an alien affect (Ahmed 2010) to understand how transplant recipients critique and protest curative imaginaries while also upholding them. Theorizations from Critical Disability Studies about how to make space for negative feeling provides important opportunities to understand how recipients evoke theory.
Keywords: Affect, curative imaginaries, transplant, Cruel optimism, Crip Negativity, Anger
Received: 17 May 2024; Accepted: 19 Nov 2024.
Copyright: © 2024 Frankel and Stern. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence:
Alexandra Frankel, York University, Toronto, Canada
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