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STUDY PROTOCOL article

Front. Psychol.
Sec. Psycho-Oncology
Volume 15 - 2024 | doi: 10.3389/fpsyg.2024.1419192

Designing a Resilience-Based Intervention program for Children with Cancer and Their Families: A Study Protocol

Provisionally accepted
Chantale Simard Chantale Simard 1*Véronique Roberge Véronique Roberge 1Maxime St-Pierre Maxime St-Pierre 1Jacques Cherblanc Jacques Cherblanc 1Christiane Bergeron-Leclerc Christiane Bergeron-Leclerc 1Mohamed A. Kadri Mohamed A. Kadri 1Laurie Lapointe Laurie Lapointe 1Carl Lacharité Carl Lacharité 2Valérie Faucher Valérie Faucher 3Samuel Bérubé Samuel Bérubé 1Sebastien S. Dufresne Sebastien S. Dufresne 1
  • 1 Université du Québec à Chicoutimi, Chicoutimi, Canada
  • 2 Université du Québec à Trois-Rivières, Trois-Rivières, Quebec, Canada
  • 3 Département de Biologie Médicale, Centre Intégré Universitaire de Santé et de Services Sociaux du Saguenay–Lac-Saint-Jean, Chicoutimi, Quebec, Canada

The final, formatted version of the article will be published soon.

    Background: Advances in pediatric oncology have significantly increased survival rates, yet have introduced challenges in managing long-term treatment side effects. This study process introduces an interdisciplinary clinical intervention program rooted in the family resilience framework, aimed at improving well-being across the cancer trajectory for children and their families, especially those in Canadian communities far from specialized oncology centers with limited access to resources. challenges, are adapted to the unique contexts of communities distant from specialized cancer treatment centers. A mixed-methods approach will evaluate program effectiveness.Expected Results: Anticipated outcomes include the empowerment of families with self-management tools and professional support, designed to mitigate biopsychosocial and spiritual complications. By addressing the specific needs and limitations of these communities, the program strives to improve the overall health and well-being of both undergoing treatment and survivorship phases.Discussion: By focusing on comprehensive care that includes both professional interventions and self-management, this initiative marks a significant shift towards a holistic, family-centered approach in pediatric oncology care for remote communities. It underlines the necessity of accessible interventions that confront immediate and long-term challenges, aiming to elevate the standard of care by emphasizing resilience, professional support, and family empowerment in underserved areas.

    Keywords: pediatric oncology, family resilience, Remote communities, Canada, Intervention mapping

    Received: 17 Apr 2024; Accepted: 08 Aug 2024.

    Copyright: © 2024 Simard, Roberge, St-Pierre, Cherblanc, Bergeron-Leclerc, Kadri, Lapointe, Lacharité, Faucher, Bérubé and Dufresne. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Chantale Simard, Université du Québec à Chicoutimi, Chicoutimi, Canada

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.