Frontiers in Genetics | ELSI in Science and Genetics

Mini Review

Published on 22 Jul 2020

A Review on the Challenges in Indian Genomics Research for Variant Identification and Interpretation

in ELSI in Science and Genetics

Sandhya Kiran Pemmasani
Rasika Raman
Rajkishore Mohapatra
Mathukumalli Vidyasagar
Anuradha Acharya

Frontiers in Genetics

doi 10.3389/fgene.2020.00753

15,836 views
12 citations

Policy and Practice Reviews

Published on 17 Jul 2020

Stem Cell Statute in Jordan: Leading the Way

in ELSI in Science and Genetics

Amal Al-Tabba’
Rana Dajani
Maysa Al-Hussaini

Frontiers in Genetics

doi 10.3389/fgene.2020.00657

7,546 views
6 citations

Original Research

Published on 30 Jun 2020

Impute.me: An Open-Source, Non-profit Tool for Using Data From Direct-to-Consumer Genetic Testing to Calculate and Interpret Polygenic Risk Scores

in ELSI in Science and Genetics

Lasse Folkersen
Oliver Pain
Andrés Ingason
Thomas Werge
Cathryn M. Lewis
Jehannine Austin

Frontiers in Genetics

doi 10.3389/fgene.2020.00578

27,784 views
53 citations

Editorial

Published on 23 Jun 2020

Editorial: ELSI in Human Enhancement: What Distinguishes It From Therapy?

in ELSI in Science and Genetics

Dov Greenbaum
Laura Y. Cabrera

Frontiers in Genetics

doi 10.3389/fgene.2020.00618

2,838 views
14 citations

Brief Research Report

Published on 14 May 2020

Deliberations About Genomic Research and Biobanks With Citizens of the Chickasaw Nation

in ELSI in Science and Genetics

Justin Reedy
Jessica W. Blanchard
Justin Lund
Paul G. Spicer
Christie Byars
Michael Peercy
Bobby Saunkeah
Erika Blacksher

Frontiers in Genetics

doi 10.3389/fgene.2020.00466

4,211 views
18 citations

Original Research

Published on 12 May 2020

Public Attitudes Toward Precision Medicine: A Nationwide Survey on Developing a National Cohort Program for Citizen Participation in the Republic of Korea

in ELSI in Science and Genetics

Hannah Kim
Hye Ryun Kim
Sumin Kim
Eugene Kim
So Yoon Kim
Hyun-Young Park

Frontiers in Genetics

doi 10.3389/fgene.2020.00283

4,326 views
10 citations

Perspective

Published on 08 May 2020

How Can We Not Waste Legacy Genomic Research Data?

in ELSI in Science and Genetics

Susan E. Wallace
Emily Kirby
Bartha Maria Knoppers

Frontiers in Genetics

doi 10.3389/fgene.2020.00446

3,358 views
13 citations

Original Research

Published on 07 May 2020

Causal Attributions in an Australian Aboriginal Family With Marfan Syndrome: A Qualitative Study

in ELSI in Science and Genetics

Aideen M. McInerney-Leo
Jennifer West
Bettina Meiser
Malcolm West
Matthew A. Brown
Emma Duncan

Frontiers in Genetics

doi 10.3389/fgene.2020.00461

4,544 views
1 citation

Original Research

Published on 06 May 2020

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

in ELSI in Science and Genetics

Shaman Narayanasamy
Varvara Markina
Adrian Thorogood
Adriana Blazkova
Mahsa Shabani
Bartha M. Knoppers
Barbara Prainsack
Robert Koesters

Frontiers in Genetics

doi 10.3389/fgene.2020.00303

13,368 views
10 citations

Original Research

Published on 28 Apr 2020

Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services

in ELSI in Science and Genetics

Li Du
Meng Wang

Frontiers in Genetics

doi 10.3389/fgene.2020.00416

11,502 views
14 citations

Original Research

Published on 19 Mar 2020

German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192)

in ELSI in Science and Genetics

Sabine Wöhlke
Manuel Schaper
Serena Oliveri
Ilaria Cutica
Francesca Spinella
Gabriella Pravettoni
Daniela Steinberger
Silke Schicktanz

Frontiers in Genetics

doi 10.3389/fgene.2020.00102

4,360 views
10 citations

Original Research

Published on 06 Mar 2020

Pioneering Informed Consent for Return of Research Results to Breast Cancer Patients Facing Barriers to Implementation of Genomic Medicine: The Kenyan BRCA1/2 Testing Experience Using Whole Exome Sequencing

in ELSI in Science and Genetics

Rispah Torrorey-Sawe
Nicole van der Merwe
Simeon Kipkoech Mining
Maritha J. Kotze

Frontiers in Genetics

doi 10.3389/fgene.2020.00170

6,269 views
16 citations

Methods

Published on 03 Mar 2020

Development of an Evidence-Based, Theory-Informed National Survey of Physician Preparedness for Genomic Medicine and Preferences for Genomics Continuing Education

in ELSI in Science and Genetics

Belinda J. McClaren
Emily A. King
Erin Crellin
Clara Gaff
Sylvia A. Metcalfe
Amy Nisselle

Frontiers in Genetics

doi 10.3389/fgene.2020.00059

9,278 views
29 citations

Original Research

Published on 03 Mar 2020

Preparing Medical Specialists for Genomic Medicine: Continuing Education Should Include Opportunities for Experiential Learning

in ELSI in Science and Genetics

Belinda J. McClaren
Erin Crellin
Monika Janinski
Amy E. Nisselle
Larissa Ng
Sylvia A. Metcalfe
Clara L. Gaff

Frontiers in Genetics

doi 10.3389/fgene.2020.00151

9,716 views
65 citations

Policy and Practice Reviews

Published on 20 Dec 2019

Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

in ELSI in Science and Genetics

Andrea Martani
Lester Darryl Geneviève
Christiane Pauli-Magnus
Stuart McLennan
Bernice Simone Elger

Frontiers in Genetics

doi 10.3389/fgene.2019.01254

20,561 views
27 citations

Original Research

Published on 20 Dec 2019

The African Genomic Medicine Training Initiative (AGMT): Showcasing a Community and Framework Driven Genomic Medicine Training for Nurses in Africa

in ELSI in Science and Genetics

Victoria Nembaware
African Genomic Medicine Training Initiative
Nicola Mulder
Omar Abidi
MB Akanle
Stuart Alvaro Ali
Cliff Asher Aliga
Paballo Chauke
Minnet Cotzee
Collet Dandara

Frontiers in Genetics

doi 10.3389/fgene.2019.01209

15,029 views
34 citations