Skip to main content

SYSTEMATIC REVIEW article

Front. Educ.
Sec. Special Educational Needs
Volume 9 - 2024 | doi: 10.3389/feduc.2024.1230011
This article is part of the Research Topic “Pathological”/ “Extreme”/ “Rational” Demand-Avoidance: Reviewing and Refining its Contested Terrain Through an Educational Perspective View all 4 articles

Methods of Studying Pathological Demand Avoidance in Children and Adolescents: A Scoping Review

Provisionally accepted
Lauren Haire Lauren Haire *Jennifer E. Symonds Jennifer E. Symonds *Joyce Senior Joyce Senior *
  • School of Education, College of Social Sciences and Law, University College Dublin, Dublin, Ireland

The final, formatted version of the article will be published soon.

    The construct of pathological demand avoidance (PDA) is relatively new and contested. Clinical reports indicate a population who obsessively resist everyday demands and have an extreme need for control. Children and adolescents who might experience PDA, and their families, struggle significantly in their daily lives, creating a need for more research into the phenomenon. To assist the developing research field, this scoping review focuses on the methodologies used to study PDA in children and adolescents. A systematic search of six databases and grey literature uncovered 57 unique records after duplicates were removed. 21 documents containing 22 studies were retained for analysis. Of the 22 studies, 21 were from the UK and one was from the Faroe Islands. There were 18 quantitative analyses and 11 qualitative analyses. Half of the studies were cross-sectional and quantitative and almost half used mixed methods. Samples were non-representative and studies often used comparison groups of children with and without PDA. Researcher's conceptualisations of PDA were coded into categories of emotional, socio-cognitive, and neurological differences. Studies of PDA focused mostly on PDA symptoms, mechanisms, and precipitants, with fewer studies of PDA origins and problems resulting from PDA or possible supports for individuals. The EDA-Q and the DISCO were the main measures used to identify PDA. Quantitative data were often analysed using inferential statistics, and qualitative data were analysed using thematic analysis, content analysis, and narrative summaries. Implications for future research are discussed.a Under diagnosis individual children are counted more than once.

    Keywords: adolescence, autism, childhood, Pathological demand avoidance, Scoping review

    Received: 27 May 2023; Accepted: 11 Jun 2024.

    Copyright: © 2024 Haire, Symonds and Senior. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence:
    Lauren Haire, School of Education, College of Social Sciences and Law, University College Dublin, Dublin, Dublin 4, Ireland
    Jennifer E. Symonds, School of Education, College of Social Sciences and Law, University College Dublin, Dublin, Dublin 4, Ireland
    Joyce Senior, School of Education, College of Social Sciences and Law, University College Dublin, Dublin, Dublin 4, Ireland

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.