About this Research Topic

Background

Inflammatory bowel disease (IBD) can significantly affect the physical and mental well-being of adults and children with the condition. Many experience frequent symptoms, have complicated treatment plans, and may experience poor psychological wellbeing. The clinical outcomes of IBD are often studied, but little is known of the interplay between clinical and non-clinical outcomes and how each may contribute positive or negative effects on the other. Non-clinical factors may include such variables as adherence, resilience, self-management, patient activation, knowledge, quality of life, and anxiety. This Research Topic aims to explore the impact of having IBD on such non-clinical factors in relation to identified clinical variables such as disease activity, inflammatory markers, and characteristics of the diagnosis such as sub-type, duration, location or behavior. This Research Topic also aims to report research that has assessed efficacy of interventions aimed at improving non-clinical variables with a focus on whether reported changes were associated with clinical well-being.

The interplay between clinical and non-clinical factors for those with inflammatory bowel disease is a topic that deserves particular focus as the condition has been shown to greatly impact physical, psychological, and cognitive development and well-being. The goal of this Research Topic is to present the latest research and reviews that study this interaction, with the aim of advancing understanding on the importance of providing holistic care to address all aspects of the individual and not just clinical parameters.

The aim of this Research Topic is to report research related to the association between clinical and non-clinical variables for children and adults with inflammatory bowel disease. This may include reporting interventions that have been studied, reviews of current literature, or observational studies on the topic. As such, the Editorial Team invite authors to submit work in the form of original research, systematic reviews, and mini-reviews that report on what is known, or what is new, within the scope of the following topics:

- Non-clinical variables may include (among others): adherence, resilience, self-management, knowledge, quality of life, patient activation, and anxiety.

- Clinical variables may include (among others): disease activity, inflammatory markers, and characteristics of the diagnosis such as sub-type, duration, location or behavior.

Professor Taft has a consulting role for Takeda. Dr Selinger received unrestricted research grants from Warner Chilcott, Janssen and AbbVie, has provided consultancy to Warner Chilcott, Dr Falk, AbbVie, Takeda, Fresenius Kabi, Galapagos, Arena and Janssen, and had speaker arrangements with Warner Chilcott, Dr Falk, AbbVie, MSD, Pfizer, Celltrion and Takeda. Ms Lores declares speaker’s fees from Janssen. All other Topic Editors declare no competing interests with regards to the Research Topic subject.

Keywords: Inflammatory Bowel Disease, Disease Activity, Symptoms, Remission, Self-Management, Adherence, Quality of Life, Resilience, Health Autonomy, Patient Activation, Anxiety Knowledge, Psychological Outcomes

Important note: All contributions to this Research Topic must be within the scope of the section and journal to which they are submitted, as defined in their mission statements. Frontiers reserves the right to guide an out-of-scope manuscript to a more suitable section or journal at any stage of peer review.

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