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PERSPECTIVE article
Front. Sociol.
Sec. Medical Sociology
Volume 10 - 2025 |
doi: 10.3389/fsoc.2025.1509351
This article is part of the Research Topic Novel Sociological Methods and Practices of Engagement across Disability Communities View all articles
A Family Caregiver Perspective: Rethinking Recovery with Phenomenology
Provisionally accepted- Western University, London, Canada
Our phenomenal experience of the world is shaped by lived moments of the present, which not only sediment into the fabric of our current reality but also actively contribute to shaping it. We continually engage in the generative and rich making of life through this ongoing, dynamic interaction with the world. From this perspective, body-mind differences resulting from brain injury could be seen as a profound transformation of one's phenomenal experience of the world. The lessons I have drawn from my caregiving experience with my sister who has critical brain injuries highlight the need to move away from ableist beliefs that disabilities are deficits to be corrected or rejected to a positive and generative search for the new, alternative ways of living well with shifted physio-psychological conditions. Using phenomenological perspectives, I aim to shift the understanding of "abnormality" from the binary of normal/abnormal to a broader vision of care. For family caregivers who struggle to help their loved one to return to a better state of health and life quality, the key point of participating in the recovery process is to gear into the lived experience of the care recipient and grasp a genuine understanding of their reality.
Keywords: Phenomenological experience, Family caregiver, social roles, Body-mind, care
Received: 31 Oct 2024; Accepted: 07 Jan 2025.
Copyright: © 2025 Ke. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence:
Junyu Ke, Western University, London, Canada
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