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ORIGINAL RESEARCH article

Front. Sleep
Sec. Pediatric and Adolescent Sleep
Volume 3 - 2024 | doi: 10.3389/frsle.2024.1455483

Understanding Levels of Engagement and Readiness for Change in an eHealth Sleep Program for Children with Neurodevelopmental Disorders

Provisionally accepted
  • 1 Department of Psychology and Neuroscience, Dalhousie University, Halifax, Canada
  • 2 Division of Neurology, SickKids Foundation, Toronto, Ontario, Canada
  • 3 Division of Neurology, University of Toronto, Toronto, Ontario, Canada

The final, formatted version of the article will be published soon.

    Background. Children with neurodevelopmental disorders (NDD) experience high rates of sleep problems. The Better Nights, Better Days for Children with Neurodevelopmental Disorders TM (BNBD-NDD TM ) program is an online intervention for parents of children with NDD who have insomnia/insomnia symptoms. The program has recently undergone a national implementation study (recruitment completed; data collection and analysis ongoing), where parental adherence and engagement are being evaluated. Preliminary results have shown that despite high levels of recruitment, there is less utilization of the program than the research team expected. Parental engagement may have been impacted by participants' motivation and readiness for change, as well as indirectly by the COVID-19 pandemic. The objective of the current study is to better understand engagement with the BNBD-NDD TM program concerning parental motivation and readiness for change, while considering the possible impacts of COVID-19. Methods. Parents of children with NDD (n = 18) who were enrolled in the BNBD-NDD TM program for a minimum of four months completed exit interviews using a researcher-generated, semi-structured interview guide. During the interview, participants were asked about their engagement in the program, perspectives on their own readiness for changing their children's sleep, and the impact of COVID-19 on their engagement. Data were analyzed following an inductive content analysis approach. Results. Several categories of data were generated that explain levels of engagement, including: 1) severity of sleep problems; 2) motivation for change; 3) previous strategies for sleep; 4) confidence in the program; 5) sacrifices made to change sleep; 6) maintenance of change; 7) experience with levels of support provided; and 8) impact of the COVID-19 pandemic. Conclusion. Parents identified several factors related to their readiness for change as contributors to their engagement level in the BNBD-NDD TM program. The COVID-19 pandemic had varied impacts on engagement for participants in this sample. Understanding parents' engagement levels within the BNBD-NDD TM e-health program related to their motivation and readiness for change is crucial to optimize uptake and adherence to the program, improve the program's implementation and sustainability, and continue to help children with NDD to sleep better.

    Keywords: Neurodevelopmental disorders (NDD), Pediatric insomnia, Sleep, eHealth, Behavioural intervention, Program Engagement and Adherence, Readiness for change, COVID-19 pandemic

    Received: 04 Jul 2024; Accepted: 23 Aug 2024.

    Copyright: © 2024 Wildeboer, Andrea, Weiss and Corkum. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Penny V. Corkum, Department of Psychology and Neuroscience, Dalhousie University, Halifax, Canada

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.