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SYSTEMATIC REVIEW article

Front. Public Health
Sec. Public Mental Health
Volume 12 - 2024 | doi: 10.3389/fpubh.2024.1485544

Impact of Pediatric Tracheostomy on Family Caregivers' Burden and Quality of Life: A Systematic Review and Meta-Analysis Short title: Pediatric Tracheostomy's Impact on Caregivers QOL

Provisionally accepted
Win Thu Aung Win Thu Aung 1Natasha Yixuan Ong Natasha Yixuan Ong 2Shina Qing Chun Yeo Shina Qing Chun Yeo 1Nur Syahindah Nur Syahindah 2Gwyneth Kong Gwyneth Kong 1Nicole-Ann Lim Nicole-Ann Lim 1ZUBAIR AMIN ZUBAIR AMIN 3*Yvonne Peng Mei Ng Yvonne Peng Mei Ng 2
  • 1 MOH Holdings (Singapore), Singapore, Singapore
  • 2 Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore
  • 3 National University of Singapore, Singapore, Singapore

The final, formatted version of the article will be published soon.

    The incidence of pediatric tracheostomy is on the rise. More children are undergoing tracheostomy at a younger age and living longer and cared for at home. Caring for children with tracheostomy affects the caregivers' Quality of Life (QOL) and caregiver burden. We undertook a systematic review and meta-analysis to determine the impact of pediatric tracheostomy on caregivers' QOL and caregiver burden. Methods: We performed a search for quantitative studies measuring QOL, caregiver burden and related factors such as psychological distress, coping, stress, and financial strain using validated instruments, reported by caregivers of children with tracheostomy. We searched PubMed, Embase, Cochrane Central Register of Clinical Trials, CINAHL, and PsycINFO with the following search terms: "paediatrics", "tracheostomy", "quality of life", "caregivers", "care burden" from the inception of respective databases to 23 rd May 2024.Meta-analysis was conducted using R (version 4.3.1). Twenty-three studies (1299 caregivers) were included in systematic review. Seven studies (469 caregivers) using Pediatric Quality of Life Family Integrated Module underwent meta-analysis. The pooled mean total family impact score, parental health-related QOL, family functioning score were 70.29 [95% CI, 69.27 [95% CI, and 72.96 [95% CI,.00] respectively. Other key instruments were the Pediatric Tracheostomy Health Status Instrument and Zarit Burden Interview. Qualitative synthesis identified several risk factors for lower QOL and higher caregiver burden: comorbidities in children, younger age at tracheostomy, need for additional medical equipment, presence of older siblings, higher financial strain, being the sole caregiver or being unmarried, and

    Keywords: psychological distress, Financial burden, stress, coping, Parents

    Received: 07 Sep 2024; Accepted: 23 Dec 2024.

    Copyright: © 2024 Aung, Ong, Yeo, Syahindah, Kong, Lim, AMIN and Ng. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: ZUBAIR AMIN, National University of Singapore, Singapore, Singapore

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