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ORIGINAL RESEARCH article

Front. Public Health
Sec. Public Health Education and Promotion
Volume 12 - 2024 | doi: 10.3389/fpubh.2024.1482771

Empowering Stroke Survivors：developing a patient versions of guidelines to facilitate patient rehabilitation nursing of stroke patients with limb dysfunction in China

Provisionally accepted
Dan Yang Dan Yang 1Jingyuan Zhang Jingyuan Zhang 1*Meiqi Meng Meiqi Meng 1Xuejing Li Xuejing Li 1*Lijiao Yan Lijiao Yan 2*Jiaxin Fang Jiaxin Fang 1Ziyan Wang Ziyan Wang 1*Sihan Chen Sihan Chen 1Xiaoyan Zhang Xiaoyan Zhang 3*Yufang Hao Yufang Hao 1*Fang Wang Fang Wang 4*
  • 1 Beijing University of Chinese Medicine, Beijing, China
  • 2 Institute of Basic Research in Clinical Medicine, China Academy of Chinese Medical Sciences, Beijing, China
  • 3 National Center of Gerontology, Institute of Geriatrics, Beijing Hospital, Peking University, Beijing, Beijing Municipality, China
  • 4 Department of Encephalopathy, Third Affiliated Hospital, Beijing University of Chinese Medicine, Beijing, China

The final, formatted version of the article will be published soon.

    Objective: To develop a patient version of guidelines (PVG) for rehabilitation nursing (RN) in stroke patients with limb dysfunction, aiming to enhance patients' awareness, self-management skills, and adherence to rehabilitation programs. Methods: This guideline was developed based on the cultural and healthcare context of China, and was guided on the Minimum standards for the Development Process, Content and Governance of Patient-Directed Knowledge Tools and the PVG tool book of the Guidelines International Network. The guideline was constructed through a normative process involving clarifying priority questions, assessing and integrating evidence, detailing and contextualizing recommendations, and evaluating the prototype of PVG. Results: Fifteen priority RN issues were identified, and eight articles (four guidelines and four evidence summaries) were included, all demonstrating robust methodological quality. The final guideline encompassed five themes: disease knowledge, functional assessment, symptom prevention and nursing, rehabilitation training, and traditional Chinese medicine nursing - a specialized approach integrating traditional Chinese medicine principles with modern nursing practices, including 26 recommendations. Conclusion: This patient-centered guideline, grounded in a robust scientific framework and tailored to patient needs, serves as a valuable reference for the RN of stroke patients with limb dysfunction. The development of context-specific patient guidelines that integrate best available evidence remains an area requiring continued effort and refinement. Further research is warranted to evaluate the implementation and effectiveness of this guideline within diverse Chinese healthcare context.

    Keywords: Patient version of guidelines, Rehabilitation care, Stroke, Evidence Based Nursing, limb dysfunction

    Received: 18 Aug 2024; Accepted: 16 Dec 2024.

    Copyright: © 2024 Yang, Zhang, Meng, Li, Yan, Fang, Wang, Chen, Zhang, Hao and Wang. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence:
    Jingyuan Zhang, Beijing University of Chinese Medicine, Beijing, China
    Xuejing Li, Beijing University of Chinese Medicine, Beijing, China
    Lijiao Yan, Institute of Basic Research in Clinical Medicine, China Academy of Chinese Medical Sciences, Beijing, China
    Ziyan Wang, Beijing University of Chinese Medicine, Beijing, China
    Xiaoyan Zhang, National Center of Gerontology, Institute of Geriatrics, Beijing Hospital, Peking University, Beijing, 100730, Beijing Municipality, China
    Yufang Hao, Beijing University of Chinese Medicine, Beijing, China
    Fang Wang, Department of Encephalopathy, Third Affiliated Hospital, Beijing University of Chinese Medicine, Beijing, 100029, China

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.