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ORIGINAL RESEARCH article

Front. Public Health
Sec. Infectious Diseases: Epidemiology and Prevention
Volume 12 - 2024 | doi: 10.3389/fpubh.2024.1474745

Validity and Reliability of Local Endemic Language Version of the SARI Stigma Scale Questionnaire for Assessing Stigma in Leprosy Patients

Provisionally accepted
Tri Rahayu Tri Rahayu 1Dewi Friska Dewi Friska 2*Yoslien Sopamena Yoslien Sopamena 3Linuwih Menaldi Linuwih Menaldi 4Kahlil Gibran Kahlil Gibran 5Dadun Dadun Dadun Dadun 3Ida Ruwaida Ida Ruwaida 6Yunia Irawati Yunia Irawati 1
  • 1 Department of Ophthalmology, Faculty of Medicine, University of Indonesia, Jakarta, Jakarta, Indonesia
  • 2 Department of Community Medicine, Faculty of Medicine, University of Indonesia, Cikini, Jakarta, Indonesia
  • 3 Faculty of Public Health, University of Indonesia, Depok, West Java, Indonesia
  • 4 Department of Dermatology and Venerology, Faculty of Medicine, University of Indonesia, Jakarta, Jakarta, Indonesia
  • 5 Faculty of Medicine, University of Indonesia, Jakarta, Papua, Indonesia
  • 6 Faculty of Social and Political Sciences, University of Indonesia, Depok, West Java, Indonesia

The final, formatted version of the article will be published soon.

    The Stigma Assessment and Reduction of Impact (SARI) Stigma Scale is an instrument developed to evaluate stigma in Leprosy patients. Despite existing versions in Indonesian, the absence of an endemic area language version of a reliable assessment tool presents a barrier to effective interventions in regions like Ambon. This study aims to evaluate the validity and reliability of the Ambonese-Malay Language of SARI Stigma Scale questionnaire. Methods: A cross-sectional study involved 50 participants with leprosy or a history of leprosy from Ambon City, Indonesia. They were tested with the SARI Stigma Scale questionnaire, consisting of 4 domains of questions, totalling 21 questions. Reliability and variability analysis was conducted from each domain's questions. Cronbach's α (CA) and intraclass correlation coefficient (ICC) determined internal consistency of reliability tests. For validity assessment, coefficients of corrected item-total correlation ensured scale accuracy for measuring stigma. Results: Reliability analysis revealed significant high internal consistency (α and ICC value >0.7) across all four domains, with CA values ranging from 0.71 to 0.94 and strong consistency among responses, with ICC ranging from 0.71 to 0.94 across domains. The total domain exhibited a CA of 0.855 and an average ICC of 0.855 (p<0.001). Validity testing demonstrated significant moderate to strong correlations, ranging from 0.69 to 0.90 (p<0.001), affirming scale validity in measuring stigma accurately. Discussion: The Ambonese-Malay version of the SARI Stigma Scale exhibits validity and reliability as an assessment tool for scoring stigma in leprosy patients in Ambon. Stigma can emerge and be associated with leprosy. To understand the stigma in society due to this disease, a validated questionnaire in the local language and adjusted with the local cultures needed.

    Keywords: (+62) 812-9903-192 Leprosy, Reliability, SARI Stigma Scale, stigma, Validity INTRODUCTION Leprosy, caused by Mycobacterium leprae

    Received: 02 Aug 2024; Accepted: 26 Dec 2024.

    Copyright: © 2024 Rahayu, Friska, Sopamena, Menaldi, Gibran, Dadun, Ruwaida and Irawati. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Dewi Friska, Department of Community Medicine, Faculty of Medicine, University of Indonesia, Cikini, 10320, Jakarta, Indonesia

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.