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ORIGINAL RESEARCH article

Front. Public Health
Sec. Public Mental Health
Volume 12 - 2024 | doi: 10.3389/fpubh.2024.1437716

Psychological wellbeing among carers of children and adolescents with physical disabilities in north-eastern Tanzania a cross-sectional survey study

Provisionally accepted
  • 1 Department of Epidemiology and Global Health, Faculty of Medicine, Umeå University, Umeå, Sweden
  • 2 Department of Physiotherapy, Kilimanjaro Christian Medical Centre, Moshi, Tanzania
  • 3 Community Health Department, Institute of Public Health, Kilimanjaro Christian Medical University College, Moshi, Tanzania
  • 4 Department of Community Medicine and Rehabilitation, Faculty of Medicine, Umeå University, Umeå, Västerbotten, Sweden

The final, formatted version of the article will be published soon.

    Introduction: Caring for physically disabled children, particularly in contexts where resources are often insufficient or absent, exposes primary carers to significant psychological strain. The lack of structured mechanisms to address this psychological burden poses a considerable threat to the wellbeing of both carers and the children with disabilities under their care. However, research on the psychological wellbeing of carers in Tanzania is scarce. This study aimed to evaluate the psychological wellbeing and symptoms of anxiety and depression, along with associated factors, of carers of children, and adolescents with physical disabilities in the Kilimanjaro region. Methods: A cross-sectional survey was conducted from November 2020 to June 2021 in the Kilimanjaro region, involving 212 carers. The Swahili versions of the WHO-5 Wellbeing Index and Hopkins Symptoms Check List-25 were used to assess psychological wellbeing and symptoms of anxiety and depression. Data were analysed using IBM SPSS Statistics V.28. Multivariable linear and binary logistic regression were used to assess the associations. Results: More than four fifths (81%) of the carers were parents, and most of these parents were mothers (92%). Of the 212 carers, more than half (51%) exhibited poor psychological wellbeing, 42% had symptoms of anxiety, and 38% symptoms of depression. Notably, poor psychological wellbeing was significantly associated with symptoms of anxiety and depression. Results of a multivariable regression analysis indicated that extended family support was associated with better psychological wellbeing and lower odds of symptoms of anxiety and depression. A higher estimated monthly income was associated with better psychological wellbeing, and lower odds of symptoms of depression. Access to rehabilitation for the child was associated with improved psychological wellbeing and decreased likelihood of symptoms of anxiety. Conclusion: Many carers of children, and adolescents with physical disabilities in Tanzania are at high risk of having poor psychological wellbeing, and symptoms of anxiety and depression. Support from extended-family networks is crucial in promoting good psychological wellbeing. The government in Tanzania should improve rehabilitation services, especially in disadvantaged rural areas, and integrate mental-health screening for carers in both rehabilitation programmes and primary healthcare.

    Keywords: physical disability, carers, Children, adolescents, Tanzania, psychological wellbeing, Anxiety, Depression

    Received: 24 May 2024; Accepted: 18 Sep 2024.

    Copyright: © 2024 Swai, Moshi, Msuya, Sörlin, Sahlen and Lindkvist. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Elia Swai, Department of Epidemiology and Global Health, Faculty of Medicine, Umeå University, Umeå, Sweden

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.