AUTHOR=Koliouli Flora , Andrianakou Marianna TITLE=COVID-19 and parents of children with epilepsy: Experiences and positive changes JOURNAL=Frontiers in Public Health VOLUME=11 YEAR=2023 URL=https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2023.1079518 DOI=10.3389/fpubh.2023.1079518 ISSN=2296-2565 ABSTRACT=Introduction

The aim of this study is to explore the ways that parents with children or adolescents with epilepsy (CAWE) experienced the restrictive measures, as well as the stressors and challenges that they had to face.

Methods

We employed an experiential approach and fifteen Greek-speaking parents answered to an in-depth semi-structured interview, during the second lockdown period. Data were analyzed through the Thematic Analysis (TA).

Results

The emerging themes were the challenges encountered in terms of medical monitoring, the “stay-home” impact on their everyday lives as a family, their psycho-emotional responses. More specifically, parents identified the irregular doctor appointments and their struggle to access the hospital services as the most important challenges. Moreover, parents reported that the “stay-home” impact has disrupted their children's daily routines among others. Finally, parents highlighted their emotional strain and worries experienced during the lockdown along with the positive changes that occurred.