AUTHOR=Martínez Oscar , Amayra Imanol , López-Paz Juan Francisco , Lázaro Esther , Caballero Patricia , García Irune , Rodríguez Alicia Aurora , García Maitane , Luna Paula María , Pérez-Núñez Paula , Barrera Jaume , Passi Nicole , Berrocoso Sarah , Pérez Manuel , Al-Rashaida Mohammad TITLE=Effects of Teleassistance on the Quality of Life of People With Rare Neuromuscular Diseases According to Their Degree of Disability JOURNAL=Frontiers in Psychology VOLUME=12 YEAR=2021 URL=https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2021.637413 DOI=10.3389/fpsyg.2021.637413 ISSN=1664-1078 ABSTRACT=
Rare neuromuscular diseases (RNMDs) are a group of pathologies characterized by a progressive loss of muscular strength, atrophy, fatigue, and other muscle-related symptoms, which affect quality of life (QoL) levels. The low prevalence, high geographical dispersion and disability of these individuals involve difficulties in accessing health and social care services. Teleassistance is presented as a useful tool to perform psychosocial interventions in these situations. The main aim of this research is to assess the effects of a teleassistance psychosocial program on the QoL levels of people with RNMDs who have different levels of disability. A sample of 73 participants was divided into an experimental group (