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ORIGINAL RESEARCH article
Front. Pediatr.
Sec. Pediatric Cardiology
Volume 13 - 2025 | doi: 10.3389/fped.2025.1555982
This article is part of the Research Topic Surgical and Non-Surgical Intervention of Congenital Heart Disease Management in Developing and Developed Countries View all 8 articles
Effect of Family Management Styles on Outcomes of Children with Complex Congenital Heart Disease after Palliative Surgery
Provisionally accepted
Yuxian Xia 1
Rui Yang 2 Yuemeng Zhang 2 Di Ying 2
Wen Zhang 1
Qi Jiang 1
Yifan Zhu 1 Haibo Zhang 1
RENJIE HU 1*
Wei Dong 1*- 1 Shanghai Children's Medical Center, Shanghai, China
- 2 School of Medicine, Shanghai Jiao Tong University, Shanghai, China
Background: To explore the family management style (FMS) after palliative surgery of children with complex congenital heart disease(CCHD) and evaluate its influence on the outcomes.Methods: A cross-sectional survey was conducted among 252 families of children with CCHD, who underwent palliative surgery at our center. Family management measure (FaMM) was used to investigate their FMS and the outcomes with different FMS were analyzed. Cluster analysis was employed to classify the FMS into distinct groups.Results: The cluster analysis identified four FMS, they were the Active and Collaborative (Cluster 1, 29.37%), the Chaotic and Cervous (Cluster 2, 10.71%), the Confident and Caring (Cluster 3, 22.22%) and the Laissez-Faire style (Cluster 4, 37.70%). Children in Cluster 1 demonstrated the highest quality of life, while thoses in Cluster 2 had the lowest (73.93±12.71, 59.03±18.70, P<0.01). The unplanned readmission rates were significantly higher in Cluster 2 and 4 (18.52%, 22.11%) compared to Cluster 1 and 3 (4.05%, 3.57%, P<0.01).Conclusion: The findings highlight the significant influence of FMS on the outcomes of children with CCHD following palliative surgery. Children in Cluster 1 exhibited the most favorable quality of life, whereas thoses in Cluster 2 manifested the worst. Health professionals should implement interventions to optimize FMS.
Keywords: congenital heart disease, Palliative surgery, Family management styles, pediatric quality of life, surgical outcome
Received: 06 Jan 2025; Accepted: 12 Mar 2025.
Copyright: © 2025 Xia, Yang, Zhang, Ying, Zhang, Jiang, Zhu, Zhang, HU and Dong. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence:
RENJIE HU, Shanghai Children's Medical Center, Shanghai, China
Wei Dong, Shanghai Children's Medical Center, Shanghai, China
Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.