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ORIGINAL RESEARCH article

Front. Pediatr.
Sec. General Pediatrics and Pediatric Emergency Care
Volume 12 - 2024 | doi: 10.3389/fped.2024.1502378

A Pilot Study of the Utility of a Hospital-Based School Program for Pediatric Patients with Cardiac Diagnoses

Provisionally accepted
  • 1 School of Medicine, Wake Forest University, Winston-Salem, North Carolina, United States
  • 2 School of Medicine, Indiana University Bloomington, Indianapolis, United States
  • 3 Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio, United States
  • 4 College of Medicine, University of Cincinnati, Cincinnati, Ohio, United States
  • 5 Osteopathic Medical School, Marian University, Indianapolis, Indiana, United States
  • 6 Ball State University Teacher's College, Muncie, United States
  • 7 Ascension St. Vincent Hospital, Indianapolis, Indiana, United States

The final, formatted version of the article will be published soon.

    Introduction: Pediatric patients with complex cardiac diagnoses have increased risk physical, cognitive, and developmental complications. Formalized school supports (i.e., individualized education programs [IEPs], Section 504 Accommodation Plans [Section 504 Plans]) that address these needs are necessary and Hospital-Based School Programs (HBSPs) have the potential to bolster acquisition. In this pilot study, we look at the impact of one HBSP. Methods: Retrospective demographic and school support data for pediatric cardiac patients were analyzed. Results: Our sample included 29 pediatric cardiac patients spanning two academic years. These patients had 100 HBSP encounters, 82 inpatient and 12 outpatient, with 68.9% of patients having multiple encounters in a single year, and 44.8% of patients being seen in both years. The HBSP made recommendations for patients to receive IEPs (N = 8) and Section 504 Plans (N = 13). They also submitted requests for medical homebound (N = 27), obtaining releases of information (N = 39), submitting medical reports (N = 10), and completing certificates of incapacity (N = 7). Statistical analyses revealed no significant relationships with patients entering or receiving a recommendation for an IEP or Section 504 Plan across any of their encounters by the HBSP on the basis of sex, race/ethnicity, school level, or rates of encounters in this sample. Discussion: Similar to previous studies, these patients had high rates of IEPs/Section 504 Plans in place and continued to receive school recommendations by the HBSP. High use of the HBSP was seen in the total number of encounters and communications (i.e., submitting to the school of record requests for classroom placement changes via medical homebound). Working with the HBSP provided access to information, formal support recommendations, and communication between medical and school settings in the form of changes in school status.

    Keywords: School1, academics2, development3, Education4, cardiology5 (Min

    Received: 26 Sep 2024; Accepted: 20 Nov 2024.

    Copyright: © 2024 Thibodaux, Orr, Reisinger, Fodstad, Xu, Wikel and Curtin. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Michelle Curtin, School of Medicine, Wake Forest University, Winston-Salem, 27157, North Carolina, United States

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.