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ORIGINAL RESEARCH article

Front. Pain Res.
Sec. Pediatric Pain
Volume 5 - 2024 | doi: 10.3389/fpain.2024.1358509
This article is part of the Research Topic Women in Science: Pediatric Pain View all 6 articles

Co-producing research study recruitment strategies with and for children and young people for paediatric chronic pain studies

Provisionally accepted
Daniela Ghio Daniela Ghio *Laura Lunt Laura Lunt Angharad Bridges Angharad Bridges Lydia Gahr Lydia Gahr Anna M. Hood Anna M. Hood
  • The University of Manchester, Manchester, United Kingdom

The final, formatted version of the article will be published soon.

    Children and young people experiencing chronic pain are at greater risk of inequitable and poor-quality pain management, which has implications for future management of pain in adulthood. Most chronic pain research is conducted with adults who are more likely to be middle-class, white and monocultured. Inclusive and diverse recruitment practices in paediatric pain research can be an area in which we can address this imbalance of representation. The aim of this current work was to explore these practices and to co-produce recommendations regarding recruitment strategies for paediatric pain research.The research team worked with Your Rheum, a United Kingdom young person's advisory group (ages 11-24 years) and diagnosed with rheumatic condition(s), the opportunity to input into rheumatology research. At a virtual Your Rheum meeting, eight young people (female=7, male=1, age range 12-24) took part in group discussions, sharing their experiences of taking part in research and their decision process. Online tools, including Mentimeter and Miro, were used to aid conversations and share ideas.Most young people had experience of taking part in research as a study participant (n=5). Recommendations synthesised included increased awareness of research in general. The young people discussed being open to hearing about research opportunities; they reflected that they are rarely exposed to these invitations or hear about current research. The clinic environment was highlighted as a "good and trustworthy" recruitment areabeing approached by a member of the research team was considered ideal, even if it was someone they had not met previously. Many young people recalled little discussions of research at their clinical appointments. Deciding to participate in research included the following considerations: benefit/impact; connecting with others; research topic; which is then balanced against convenience, and reimbursement. The young people felt that taking part in research was empowering and helped them take ownership of their pain management.It is essential to understand the perspectives of potential study participants, to plan successful recruitment strategies. Ensuring we consider these factors when designing our studies and recruitment strategies is beneficial to all involved. Co-produced recruitment strategies would aid inclusive (and increased) research participation.

    Keywords: paediatric pain research, inclusive-recruitment2, Equality, diversity inclusion3, Patient and public involvement, PPI, co-development. (Min

    Received: 19 Dec 2023; Accepted: 28 Jun 2024.

    Copyright: © 2024 Ghio, Lunt, Bridges, Gahr and Hood. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Daniela Ghio, The University of Manchester, Manchester, United Kingdom

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.