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ORIGINAL RESEARCH article
Front. Oncol.
Sec. Pediatric Oncology
Volume 15 - 2025 | doi: 10.3389/fonc.2025.1510099
This article is part of the Research Topic Current Status and Future Directions of Pediatric Palliative Care in Oncology View all 7 articles
VALIDATION OF THE TURKISH ADAPTATION OF FACETS-OF-PPC: A MULTIDIMENSIONAL OUTCOME MEASURE FOR PEDIATRIC PALLIATIVE CARE
Provisionally accepted
Fatma Zehra Oztek Celebi 1,2*
Yasemin Bozdag 1,2
Songul Deniz Boybeyi 1
Melahat Melek Oguz 1,2 Esma Altinel Acoglu 1,2 Saliha Senel 3,4
Sanliay Sahin 2,5- 1 Ankara Etlik City Hospital, Ankara, Ankara, Türkiye
- 2 University of Health Sciences (Turkey), Istanbul, Ankara, Türkiye
- 3 Ankara City Hospital, Ankara, Ankara, Türkiye
- 4 Faculty of Medicine, Ankara Yildirim Beyazit University, Ankara, Ankara, Türkiye
- 5 Mersin City Hospital, Toroslar, Mersin, Türkiye
Background and Aims: This study aims to validate the Turkish version of the Family-Centered Multidimensional Outcome Measure for Pediatric Palliative Care (FACETS-OF-PPC), originally developed in Germany for children with severe neurological impairments and their families.Methods: The FACETS-OF-PPC was translated and culturally adapted following the World Health Organization's guidelines. Following expert reviews and pilot testing, the final version was completed and implemented between February and December 2021 at a pediatric palliative care center in Türkiye. Participants included family members and healthcare professionals closely involved with the patients. Exclusion criteria were age over 18, end-of-life stage, or non-Turkish speakers. Confirmatory factor analysis was conducted to evaluate the factorial validity.Results: The study analyzed 102 responses (51 parents, 51 healthcare professionals), revealing suboptimal model fit (X²/df = 2.29; CFI = 0.805; TLI = 0.757; SRMR = 0.109; RMSEA = 0.114). Internal consistency was adequate for the "normalcy" (ω = 0.87) and "caregiver competencies" (ω = 0.86) scales, but insufficient for "child’s social participation" (ω = 0.51), "social support" (ω = 0.20), and "coping with the disease" (ω = 0.50).Conclusions: While the Turkish version of FACETS-OF-PPC showed reliable results for certain dimensions, cultural differences and the small sample size likely affected the overall validity, suggesting the need for further refinement.
Keywords: Children, cultural adaptation of outcome assessment, Life limiting disease, life treating disease, Neurological impairment, Palliative care - standards
Received: 12 Oct 2024; Accepted: 04 Mar 2025.
Copyright: © 2025 Oztek Celebi, Bozdag, Boybeyi, Oguz, Altinel Acoglu, Senel and Sahin. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence:
Fatma Zehra Oztek Celebi, Ankara Etlik City Hospital, Ankara, 06170, Ankara, Türkiye
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