AUTHOR=Stratton Catherine , Vassilopoulos Areti , Brenton J. Nicholas , Potter Kirsten , Vargas Wendy , Rumm Heather , Bartels Andrea , Bailey Mary , Odonkor Charles , Stoll Sharon , Zempsky E. William T. , Yeh E. Ann , Makhani Naila TITLE=Interim guidelines for the assessment and treatment of pain in children with multiple sclerosis JOURNAL=Frontiers in Neuroscience VOLUME=17 YEAR=2023 URL=https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2023.1235945 DOI=10.3389/fnins.2023.1235945 ISSN=1662-453X ABSTRACT=Introduction

Pain in multiple sclerosis (MS) is common, but literature on pain in children with MS remains scarce. Pain has physical, psychological, and social implications in MS, and both comprehensive assessment and interdisciplinary management approaches are needed. We sought to develop an interdisciplinary interim guideline for the assessment and management of pain in children with MS.

Methods and materials

We convened a modified Delphi panel composed of 13 experts in pediatric and adult MS neurology, physiotherapy, pain, patient lived-experience, advanced practice nursing, psychology, physiatry, and MS research. A survey was sent to panelists for anonymous completion. The panel discussed survey themes extracted by the panel chair. The process was repeated twice.

Results

Thirteen assessment and treatment recommendations were produced regarding pain in children with MS.

Discussion

Future studies will assess implementation of these pain assessment and treatment guidelines in the clinical setting.