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BRIEF RESEARCH REPORT article

Front. Med.
Sec. Rheumatology
Volume 12 - 2025 | doi: 10.3389/fmed.2025.1509357

Development and implementation of the International AIDA Network Spondylarthritis Registry

Provisionally accepted
Valeria Caggiano Valeria Caggiano 1Antonio Vitale Antonio Vitale 1Andrea Hinojosa-Azaola Andrea Hinojosa-Azaola 2Guillermo Arturo Guaracha-Basañez Guillermo Arturo Guaracha-Basañez 2Piero Ruscitti Piero Ruscitti 3Paola Cipriani Paola Cipriani 3Samar Tharwat Samar Tharwat 4Hanan M Elberashi Hanan M Elberashi 4Esraa E Othman Esraa E Othman 4Alessandro Conforti Alessandro Conforti 5Giancarlo Gimignani Giancarlo Gimignani 5Şükran Erten Şükran Erten 6Patrizia Barone Patrizia Barone 7Maissa Thabet Maissa Thabet 8Jurgen Sota Jurgen Sota 1José Hernández-Rodríguez José Hernández-Rodríguez 9Veronica Gomez-Caverzaschi Veronica Gomez-Caverzaschi 9Gaafar Ragab Gaafar Ragab 10Amina Maher Amina Maher 10Ezgi Deniz Batu Ezgi Deniz Batu 11Perla Ayumi Kawakami-Campos Perla Ayumi Kawakami-Campos 2José Jiram Torres-Ruiz José Jiram Torres-Ruiz 2Carla Gaggiano Carla Gaggiano 1Abdurrahman Tufan Abdurrahman Tufan 12Hamit Kucuk Hamit Kucuk 13Henrique Giardini Henrique Giardini 14Guiga Ahmed Guiga Ahmed 8Mehmet Akif Eksin Mehmet Akif Eksin 15Lampros Fotis Lampros Fotis 16Azadeh Shariat Panahi Azadeh Shariat Panahi 3Stefano Gentileschi Stefano Gentileschi 1Ibrahim Almaghlouth Ibrahim Almaghlouth 17Petros P Sfikakis Petros P Sfikakis 16George E Fragoulis George E Fragoulis 16Costanza Monterosso Costanza Monterosso 18Daniela Opris-Belinski Daniela Opris-Belinski 19Soad Hashad Soad Hashad 20Nunzia Di Meglio Nunzia Di Meglio 1Cristian Sica Cristian Sica 1Bahar Özdemir Ulusoy Bahar Özdemir Ulusoy 15Alejandra de-la-Torre Alejandra de-la-Torre 21Ewa Barbara Wiesik-Szewczyk Ewa Barbara Wiesik-Szewczyk 22Katarzyna Rybak Katarzyna Rybak 23Alberto Balistreri Alberto Balistreri 1Claudia Fabiani Claudia Fabiani 1Maria Antonietta Mazzei Maria Antonietta Mazzei 1Bruno Frediani Bruno Frediani 1Luca Cantarini Luca Cantarini 1*
  • 1 University of Siena, Siena, Italy
  • 2 Departamento de Nutrición Animal, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Ciudad de México, Mexico
  • 3 University of L'Aquila, L'Aquila, Abruzzo, Italy
  • 4 Mansoura University, Mansoura, Dakahlia, Egypt
  • 5 azienda sanitaria locale roma 4, Roma, Italy
  • 6 Ankara Yıldırım Beyazıt University, Ankara, Ankara, Türkiye
  • 7 A.O.U. Policlinico G. Rodolico- San Marco di Catania, Catania, Sicily, Italy
  • 8 University of Sousse, Sousse, Tunisia
  • 9 University of Barcelona, Barcelona, Catalonia, Spain
  • 10 Cairo University, Giza, Giza, Egypt
  • 11 Hacettepe University, Ankara, Ankara, Türkiye
  • 12 Gazi University Hospital, Ankara, Ankara, Türkiye
  • 13 Gazi University, Ankara, Ankara, Türkiye
  • 14 Universidade Cidade de São Paulo, São Paulo, Sao Paulo, Brazil
  • 15 Ankara Gaziler Physical Therapy and Rehabilitation Training and Research Hospital, Ankara, Ankara, Türkiye
  • 16 National and Kapodistrian University of Athens, Athens, Greece
  • 17 King Saud University, Riyadh, Riyadh, Saudi Arabia
  • 18 San Raffaele Hospital (IRCCS), Milan, Lombardy, Italy
  • 19 Carol Davila University of Medicine and Pharmacy, Bucharest, Bucharest, Romania
  • 20 Tripoli University Hospital, Tripoli, Libya
  • 21 Rosario University, Bogotá, Bogota, Colombia
  • 22 Department of Internal Medicine, Pulmonology, Allergy and Clinical Immunology, Military Institute of Medicine (Poland), Warsaw, Masovian, Poland
  • 23 Department of Internal Diseases, Pneumonology, Allergology and Clinical Immunology, Military Institute of Medicine (Poland), Warsaw, Masovian, Poland

The final, formatted version of the article will be published soon.

    During the last decade, spondyloarthritis (SpA) has increasingly been considered a disease at the crossroads between autoimmunity and autoinflammation. Some patients may even present with autoinflammatory-related manifestations, including fever, hidradenitis suppurativa, other neutrophilic dermatoses, and an unusually high increase in inflammatory markers. Therefore, a subgroup of SpA patients may be identified, and specific details about this cluster need to be investigated. In this regard, the AutoInflammatory Disease Alliance (AIDA) Network has developed a registry primarily aimed at better understanding the autoinflammatory aspects of SpA. The development of this Registry favours the systematic assessment of SpA through the lens of autoinflammation, giving a voice to patients with atypical presentations, and favoring a personalized treatment approach. By supporting research and facilitating the transfer of new evidence to clinical practice, this specific registry has the potential to significantly advance the field of rheumatology and enhance the lives of patients suffering from this complex and multifaceted disease.

    Keywords: Register, Real life, Treatment, Autoinflamatory diseases, Spondylarthritis, Prognostic factor

    Received: 10 Oct 2024; Accepted: 31 Jan 2025.

    Copyright: © 2025 Caggiano, Vitale, Hinojosa-Azaola, Guaracha-Basañez, Ruscitti, Cipriani, Tharwat, Elberashi, Othman, Conforti, Gimignani, Erten, Barone, Thabet, Sota, Hernández-Rodríguez, Gomez-Caverzaschi, Ragab, Maher, Batu, Kawakami-Campos, Torres-Ruiz, Gaggiano, Tufan, Kucuk, Giardini, Ahmed, Eksin, Fotis, Shariat Panahi, Gentileschi, Almaghlouth, Sfikakis, Fragoulis, Monterosso, Opris-Belinski, Hashad, Di Meglio, Sica, Özdemir Ulusoy, de-la-Torre, Wiesik-Szewczyk, Rybak, Balistreri, Fabiani, Mazzei, Frediani and Cantarini. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence: Luca Cantarini, University of Siena, Siena, Italy

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