The final, formatted version of the article will be published soon.
PERSPECTIVE article
Front. Med.
Sec. Rheumatology
Volume 11 - 2024 |
doi: 10.3389/fmed.2024.1456063
Challenges and opportunities in transitional care process in Behçet's syndrome
Provisionally accepted- 1 Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy
- 2 Rheumatology Unit, Meyer University Hospital, University of Florence, Florence, Tuscany, Italy
- 3 Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy, Florence, Italy
- 4 Department of Medicine, Surgery and Health Sciences, University of Trieste, Trieste, Italy
Behçet's syndrome (BS) is a rare chronic multi-systemic inflammatory disorder that usually involves adults between third and fourth decades of life, while pediatric and juvenile onset are relatively rare. BS young patients (YP) often develop a full-blown disease late after onset, requiring careful diagnostic workup and regular follow-up while they grow up. In this regard, the purpose of transitional programs is to ensure continuous high-quality care to YP with chronic conditions, providing them with the skills necessary to become independent and empowered adults able to chronically self-manage their disease. EULAR/PReS released the first set of standards and recommendations for transitional care (TC) of YP with juvenile-onset rheumatic diseases, but the appropriate timing for transition, the tools to evaluate patients' readiness, and indicators of transition plans effectiveness still need to be identified. Although little is known regarding TC in BS, it is easy to assume that BS YP will benefit from developmentally and disease-specifically appropriate transition plans, which may promote continuity of care, improve perceived quality of life and prevent poor disease outcomes. This perspective article discusses the key concepts and the goals of TC, addressing the potential challenges and opportunities of TC for YP with BS in clinical practice.
Keywords: Behçet's syndrome, pediatric rheumatology, Transitional care, review, patient centred care
Received: 27 Jun 2024; Accepted: 04 Sep 2024.
Copyright: © 2024 Cianni, Mastrolia, Biancalana, Marinelo, Emmi, Mosca, Simonini and Talarico. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence:
Rosaria Talarico, Rheumatology Unit, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy
Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.