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ORIGINAL RESEARCH article
Front. Glob. Womens Health
Sec. Quality of Life
Volume 5 - 2024 |
doi: 10.3389/fgwh.2024.1480060
Her, His, and Their Journey with Endometriosis: A Qualitative Study
Provisionally accepted- 1 Bar-Ilan University, Ramat Gan, Israel
- 2 Endo Israel Community Association, Givatayim, Israel
- 3 Ariel University, Ariel, Israel
Background: Endometriosis, impacting roughly 10% of reproductive-age women and girls globally, presents diagnostic challenges that can cause significant delays between symptom onset and medical confirmation. The aim of the current study was to explore the experience of women with endometriosis as well as that of their partners, from prediagnosis to diagnosis to post-diagnosis.In-depth semi-structured interviews were conducted with 10 couples coping with endometriosis. Each partner was interviewed separately, and each interview was analyzed both individually and as part of a dyad, using the dyadic interview analysis method.Results: Three main themes emerged: (i) "Relationship in the shadow of uncertainty":Coping with health symptoms prior to the formal endometriosis diagnosis; (ii) Coping together or alone when receiving the endometriosis diagnosis; and (iii) "The day after the diagnosis": Moving between adversity and growth.The study's findings emphasize the importance of viewing the diagnosis from a dyadic perspective and comprehensivelythat is, from pre-diagnosis to accepting the formal diagnosis to post-diagnosis. This journey can have a profound impact on both couple members, affecting their day-to-day functioning, communication, emotional and physical intimacy, and fertility.
Keywords: Endometriosis, coping, Qualitative method, dyadic interview analysis, couples
Received: 13 Aug 2024; Accepted: 01 Nov 2024.
Copyright: © 2024 Shinan-Altman, Wertheimer, Frankel and Hamama-Raz. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
* Correspondence:
Shiri Shinan-Altman, Bar-Ilan University, Ramat Gan, Israel
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