AUTHOR=Eekhoff Elisabeth M. W. , Micha Dimitra , Forouzanfar Tymour , de Vries Teun J. , Netelenbos J. Coen , Klein-Nulend Jenneke , van Loon Jack J. W. A. , Lubbers Wouter D. , Schwarte Lothar , Schober Patrick , Raijmakers Pieter G. H. M. , Teunissen Bernd P. , de Graaf Pim , Lammertsma Adriaan A. , Yaqub Maqsood M. , Botman Esmée , Treurniet Sanne , Smilde Bernard J. , Bökenkamp Arend , Boonstra Anco , Kamp Otto , Nieuwenhuijzen Jakko A. , Visser Marieke C. , Baayen Hans J. C. , Dahele Max , Eeckhout Guus A. M. , Goderie Thadé P. M. , Smits Cas , Gilijamse Marjolijn , Karagozoglu K. Hakki , van de Valk Paul , Dickhoff Chris , Moll Annette C. , Verbraak Frank F. D. , Curro-Tafili Katie K. R. , Ghyczy Ebba A. E. , Rustemeyer Thomas , Saeed Peeroz , Maugeri Alessandra , Pals Gerard , Ridwan-Pramana Angela , Pekel Esther , Schoenmaker Ton , Lems Willem , Winters Henri A. H. , Botman Matthijs , Giannakópoulos Georgios F. , Koolwijk Peter , Janssen Jeroen J. W. M. , Kloen Peter , Bravenboer Nathalie , Smit Jan Maerten , Helder Marco N. TITLE=Collaboration Around Rare Bone Diseases Leads to the Unique Organizational Incentive of the Amsterdam Bone Center JOURNAL=Frontiers in Endocrinology VOLUME=11 YEAR=2020 URL=https://www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2020.00481 DOI=10.3389/fendo.2020.00481 ISSN=1664-2392 ABSTRACT=

In the field of rare bone diseases in particular, a broad care team of specialists embedded in multidisciplinary clinical and research environment is essential to generate new therapeutic solutions and approaches to care. Collaboration among clinical and research departments within a University Medical Center is often difficult to establish, and may be hindered by competition and non-equivalent cooperation inherent in a hierarchical structure. Here we describe the “collaborative organizational model” of the Amsterdam Bone Center (ABC), which emerged from and benefited the rare bone disease team. This team is often confronted with pathologically complex and under-investigated diseases. We describe the benefits of this model that still guarantees the autonomy of each team member, but combines and focuses our collective expertise on a clear shared goal, enabling us to capture synergistic and innovative opportunities for the patient, while avoiding self-interest and possible harmful competition.