AUTHOR=Snowball Ellen , Aiken Christine , Norman Myrna , Hykaway Wayne , Dempster Zoe , Itzhak Inbal , McLellan Emily , McGilton Katherine S. , Bethell Jennifer TITLE=Engaging people with lived experience of dementia in research meetings and events: insights from multiple perspectives JOURNAL=Frontiers in Dementia VOLUME=3 YEAR=2024 URL=https://www.frontiersin.org/journals/dementia/articles/10.3389/frdem.2024.1421737 DOI=10.3389/frdem.2024.1421737 ISSN=2813-3919 ABSTRACT=

This perspective article describes the experiences of engaging people with lived experience of dementia in research meetings and events from the perspectives of people with lived experience, researchers, trainees, audience members and others. We outline examples of engagement from different events and describe a video project, initiated by people with lived experience, conveying diverse views about becoming integral collaborators in the Canadian Consortium on Neurodegeneration in Aging (CCNA) annual Partners Forum and Science Days. We also report evaluation data from audiences and present a series of tips and strategies for facilitating this engagement, including practical considerations for supporting people with lived experience.