AUTHOR=Lemieux Victoria L. , Hofman Darra , Hamouda Hoda , Batista Danielle , Kaur Ravneet , Pan Wen , Costanzo Ian , Regier Dean , Pollard Samantha , Weymann Deirdre , Fraser Rob 

TITLE=Having Our “Omic” Cake and Eating It Too?: Evaluating User Response to Using Blockchain Technology for Private and Secure Health Data Management and Sharing

JOURNAL=Frontiers in Blockchain

VOLUME=3

YEAR=2021

URL=https://www.frontiersin.org/journals/blockchain/articles/10.3389/fbloc.2020.558705

DOI=10.3389/fbloc.2020.558705

ISSN=2624-7852

ABSTRACT=<p>This paper reports on end users' perspectives on the use of a blockchain solution for private and secure individual “omics” health data management and sharing. This solution is one output of a multidisciplinary project investigating the social, data, and technical issues surrounding application of blockchain technology in the context of personalized healthcare research. The project studies potential ethical, legal, social, and cognitive constraints of self-sovereign healthcare data management and sharing, and whether such constraints can be addressed through careful design of a blockchain solution.</p>