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PERSPECTIVE article

Front. Oncol.
Sec. Cancer Epidemiology and Prevention
Volume 14 - 2024 | doi: 10.3389/fonc.2024.1438805
This article is part of the Research Topic Joining Efforts to Improve Data Quality and Harmonization Among European Population-Based Cancer Registries View all 16 articles

Facing further challenges in cancer data quality and harmonisation

Provisionally accepted
Francesco Giusti Francesco Giusti 1,2*Carmen Martos Carmen Martos 1,3*Raquel N. Carvalho Raquel N. Carvalho 1*Vesna Zadnik Vesna Zadnik 4Otto Visser Otto Visser 5Manola Bettio Manola Bettio 1*Liesbet Van Eycken Liesbet Van Eycken 2
  • 1 European Commission, Joint Research Centre (JRC), Ispra, Italy
  • 2 Belgian Cancer Registry, Brussels, Belgium
  • 3 Foundation for the Promotion of Health and Biomedical Research in the Valencian Region (FISABIO), Valencia, Spain, Valencia, Spain
  • 4 Institute of Oncology Ljubljana, Ljubljana, Slovenia
  • 5 Department of Registration, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands, Utrecht, Netherlands, Netherlands

The final, formatted version of the article will be published soon.

    This article highlights the recent and ongoing activities of European population-based cancer registries (PBCRs) in data quality and harmonisation in the framework of the collaboration between the European Network of Cancer Registries (ENCR) and the Directorate-General Joint Research Centre (JRC), the science and knowledge centre of the European Commission.The article concludes the Frontiers in Oncology's Research Topic "Joining Efforts to Improve Data Quality and Harmonization Among European Population-Based Cancer Registries", which has been an opportunity for several European researchers to share their experience on cancer data quality and harmonisation. Such experience will be helpful for PBCRs in view of future challenges and opportunities in cancer epidemiology, with a few examples discussed in the present article.

    Keywords: cancer registry, data quality, Data harmonisation, Challenges, Europe (Min.5-Max

    Received: 26 May 2024; Accepted: 01 Jul 2024.

    Copyright: © 2024 Giusti, Martos, Carvalho, Zadnik, Visser, Bettio and Van Eycken. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) or licensor are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

    * Correspondence:
    Francesco Giusti, European Commission, Joint Research Centre (JRC), Ispra, Italy
    Carmen Martos, European Commission, Joint Research Centre (JRC), Ispra, Italy
    Raquel N. Carvalho, European Commission, Joint Research Centre (JRC), Ispra, Italy
    Manola Bettio, European Commission, Joint Research Centre (JRC), Ispra, Italy

    Disclaimer: All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.