CFHealthHub: The development of a digital intervention to provide feedback on objective nebuliser adherence data for adults with Cystic Fibrosis (CF)
-
1
Sheffield Hallam University, Department of Psychology Sociology & Politics, United Kingdom
-
2
University of Sheffield, School of Health and Related Research (ScHARR), United Kingdom
-
3
Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield Adult Cystic Fibrosis Centre, United Kingdom
-
4
University of Manchester, Health eResearch Centre (HeRC), United Kingdom
Rationale
Cystic Fibrosis (CF) is a life limiting condition affecting 10,000 patients in the UK. Preventative medication improves health outcomes however adherence is poor. PARI, have developed a nebuliser with data recording and transfer capability (eTrack), which works with the Qualcomm hub (a docking device) to enable wireless transfer of objective adherence data. We used this technology to develop a digital platform called CFHealthHub (CFHH) to display nebuliser adherence data and to provide suitable adherence support using behaviour change techniques for people with Cystic Fibrosis (PWCF).
Aim
The study aimed to test the eTrack/Qualcomm hub technology as a means of providing and feeding back objective adherence data, and to collect participant feedback to co-develop CFHH and an associated behaviour change intervention.
Methodology
This was a two-stage qualitative interviews study. Eligible participants were PWCF, aged 16 or older; willing to take treatments via the eTrack nebuliser.
In stage one, five participants (3 female and 2 male, aged 20-33 years) used a beta version of the CFHH website, and were followed up after one week to troubleshoot any data upload issues. A semi-structured interview was conducted after one month.
Stage two was conducted with 22 participants (14 females and eight males, aged 19-57 years) and involved rapid cycle development of the CFHH digital platform. Participants received four sessions with a physiotherapist over six months and were given independent access to CFHH. Semi-structured interviews with patients (n=18) and a semi-structured ‘thinkaloud’ protocol (n=6) were conducted by researchers during the intervention programme to elicit feedback on the acceptability and appropriateness of the CFHH content and interactions with the physiotherapist.
Analysis
In order to support the fast-paced development cycles, interviewers made notes during all interviews and wrote these up as soon as possible afterwards. For the think aloud protocol, the interviewer re-watched the video recording to identify parts of the video that showed technical issues or places where participants struggled to find content. All notes and video content were shared with the research team.
Results
The CFHH digital platform and intervention visits were found to be acceptable to patients. Issues identified related to the appearance of the website being too clinical, technical issues such as slow website speed, participants wanting to change the look of the data display and tailor and personalise the appearance and content of the website, nebuliser issues such as problems with data transfer, infrequent use of the website, difficulties finding particular content, and additional wants such as a forum and smartphone app. Changes to the design and content such as enabling personalisation of the website, and developing push notifications, reminders and rewards were made based on this feedback.
Conclusion
We have developed a complex intervention to support medication adherence in PWCF, which includes data displays and a website, co-produced with patients. These components of the complex intervention are useable by, as well as acceptable and appropriate to PWCF.
Acknowledgements
This abstract summarises independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (Grant Reference Number RP-PG-1212-20015). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
Keywords:
cystic fibrosis (CF),
adherence,
Behaviour Change,
Self-Monitoring,
Digital Health,
intervention
Conference:
3rd UCL Centre for Behaviour Change Digital Health Conference 2017: Harnessing digital technology for behaviour change, London, United Kingdom, 22 Feb - 23 Feb, 2017.
Presentation Type:
Research abstract
Topic:
Digital Health
Citation:
Arden
MA,
Drabble
SJ,
O'Cathain
A,
Hind
D,
Hutchings
M,
Whelan
P and
Wildman
M
(2017). CFHealthHub: The development of a digital intervention to provide feedback on objective nebuliser adherence data for adults with Cystic Fibrosis (CF).
Front. Public Health.
Conference Abstract:
3rd UCL Centre for Behaviour Change Digital Health Conference 2017: Harnessing digital technology for behaviour change.
doi: 10.3389/conf.FPUBH.2017.03.00081
Copyright:
The abstracts in this collection have not been subject to any Frontiers peer review or checks, and are not endorsed by Frontiers.
They are made available through the Frontiers publishing platform as a service to conference organizers and presenters.
The copyright in the individual abstracts is owned by the author of each abstract or his/her employer unless otherwise stated.
Each abstract, as well as the collection of abstracts, are published under a Creative Commons CC-BY 4.0 (attribution) licence (https://creativecommons.org/licenses/by/4.0/) and may thus be reproduced, translated, adapted and be the subject of derivative works provided the authors and Frontiers are attributed.
For Frontiers’ terms and conditions please see https://www.frontiersin.org/legal/terms-and-conditions.
Received:
22 Feb 2017;
Published Online:
22 Feb 2017.
*
Correspondence:
Prof. Madelynne A Arden, Sheffield Hallam University, Department of Psychology Sociology & Politics, Sheffield, S10 2BQ, United Kingdom, m.arden@shu.ac.uk